of care work contributes to the precarity of archiving women’s care labor history. To preserve this aspect of our cultural history, it’s vital to engage with those performing care work, as well as to understand the different ways that community care work is performed. Documenting caregiver culture on social media allows us to identify the contributions that caregivers and care communities make, along with the barriers they face.
No one has helped me to understand this more than Cynthia “Cindy Ann” Espinoza. Cindy Ann and I met when we both attended Metropolitan Community Church in San Antonio. She graciously offered to phone number list participate in my research when I spoke at a community education session on Alzheimer’s disease that the church sponsored in collaboration with the local chapter of the Alzheimer’s Association. We became Facebook friends shortly thereafter and I observed firsthand the virtual care work in which Cindy Ann participated, as well as the archive she had created of the “real world” care she provided her mother who passed from complications of Alzheimer’s dementia several years earlier.
On January 17, 2017, about a week before PBS aired the documentary Alzheimer’s: Every Minute Counts, Cindy Ann posted a video excerpt from the film to her wall on Facebook. The three-minute video, with 4.4 million views and over 5,000 comments, was originally posted to Facebook by Next Avenue, a PBS digital publication dedicated to issues facing individuals over 50 years old in the United States. The documentary follows Daisy Duarte, a Latina in Minneapolis, as she cares for her mother, Sonja, who is living with early-onset Alzheimer’s dementia.
Next Avenue’s original post reads, “Millions of Americans will be able to relate to this story.” Cindy Ann identified herself as one of those millions of Americans almost five years after her mother’s passing from complications of Alzheimer’s dementia. Her post included the message, “I can relate to this woman in this story. Its the hardest thing to see ur parent dealing with Alzheimer”s ..but i did it for 9 yrs caring for my Mom i have no regrets. I would do it all again even if she didn’t remember who i was. I love & miss you dearly Mommy..” Cindy Ann watched Daisy wash her mother’s clothes, brush her teeth, apply her makeup, do her hair, show her how to hold a spoon, sit her in a recliner to watch television—all while exclusively speaking Spanish. The invisible care work Cindy Ann provided her mother nearly a decade before was publicly visible for the world to see.